B\u0259z\u0259n k\u00fc\u00e7\u0259d\u0259 sa\u011flaml\u0131q imkanlar\u0131 m\u0259hdud olan u\u015faqlar g\u00f6rd\u00fckd\u0259 qeyri-ixtiyari \u00e7evrilib onlara bir ne\u00e7\u0259 d\u0259f\u0259\u00a0bax\u0131r\u0131q. \u015e\u00fcbh\u0259siz oxucular da m\u0259niml\u0259 raz\u0131la\u015far ki, bu bax\u0131\u015flar\u0131n b\u00f6y\u00fck \u0259ks\u0259riyy\u0259ti o u\u015faqlar\u0131 narahat ed\u0259c\u0259k t\u0259rzd\u0259\u00a0olur. Etiraf ed\u0259k ki, c\u0259miyy\u0259t olaraq biz h\u0259l\u0259 d\u0259 emosiyalar\u0131m\u0131z\u0131 idar\u0259 etm\u0259yi yax\u015f\u0131 bacarm\u0131r\u0131q.<\/p>\n
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\u018fslind\u0259 is\u0259 o insanlara \u00fcz\u00fclm\u0259k yox, bizl\u0259rd\u0259n biri kimi yana\u015fmaq laz\u0131md\u0131r. Onlar da sizin kimi, m\u0259nim kimi insand\u0131r v\u0259 m\u00fcmk\u00fcnd\u00fcr ki, c\u0259miyy\u0259td\u0259 h\u0259r \u015feyi eyni d\u0259r\u0259c\u0259d\u0259, m\u00fck\u0259mm\u0259l yerin\u0259 yetir\u0259 bilmirl\u0259r. Biz m\u00fck\u0259mm\u0259likmi? \u018flb\u0259tt\u0259 ki, xeyr.<\/p>\n
Bu g\u00fcn aram\u0131zda h\u0259yat e\u015fqi il\u0259 dolub-da\u015fan, h\u0259r zaman u\u015faq kimi qalan Daun sindromlu u\u015faqlardan dan\u0131\u015faca\u011f\u0131q. Badam g\u00f6zl\u00fc, g\u00fcl\u00fc\u015f\u00fcn \u0259n \u00e7ox yara\u015fd\u0131\u011f\u0131 m\u0259l\u0259kl\u0259rd\u0259n… Tez-tez sa\u011flaml\u0131q imkanlar\u0131 m\u0259hdud u\u015faqlar \u00fc\u00e7\u00fcn bir s\u0131ra sosial layih\u0259l\u0259rin ke\u00e7irildiyini e\u015fidirik.<\/p>\n
Bu h\u0259min sa\u011flaml\u0131q imkanlar\u0131 m\u0259hdud olan u\u015faqlar\u0131n ya\u015fad\u0131\u011f\u0131 d\u00fcnyaya bir g\u00fcnl\u00fck bel\u0259 olsa s\u0259yah\u0259t etm\u0259yimiz\u0259, onlar\u0131n d\u00fc\u015f\u00fcnc\u0259l\u0259rini, hekay\u0259l\u0259rini \u00f6yr\u0259nm\u0259k \u00fc\u00e7\u00fcn bir \u015fansd\u0131r. Qar\u015f\u0131m\u0131zdak\u0131 insan\u0131 ba\u015fa d\u00fc\u015fm\u0259k \u00fc\u00e7\u00fcn m\u00fctl\u0259q \u015f\u0259kild\u0259 empatiya qurma\u011f\u0131 bacarmaq laz\u0131md\u0131r.<\/p>\n
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Daun x\u0259st\u0259lik deyil, bu\u00a0bir sindromdur. Nec\u0259 dey\u0259rl\u0259r onlar bizd\u0259n bir xromosom daha \u00e7ox olmas\u0131 il\u0259 f\u0259rql\u0259nirl\u0259r. Ad\u0259t\u0259n Daun sindromlu insanlara \u201cG\u00fcn\u0259\u015fin u\u015faqlar\u0131\u201d\u00a0deyirl\u0259r. B\u0259z\u0259n o u\u015faqlar\u0131n valideynl\u0259rin\u0259 i\u00e7d\u0259n-i\u00e7\u0259 \u00fcz\u00fcl\u00fcr\u00fck. Lakin, nahaq yer\u0259, \u00e7\u00fcnki o valideynl\u0259r bel\u0259 f\u0259rqli, s\u0259mimi \u00f6vladlar\u0131 oldu\u011fu \u00fc\u00e7\u00fcn xo\u015fb\u0259xtdirl\u0259r. O atalar\u0131n, analar\u0131n irad\u0259sin\u0259, u\u015faqlar\u0131 \u00fc\u00e7\u00fcn var g\u00fccl\u0259ri il\u0259 \u00e7al\u0131\u015fmaqlar\u0131na, h\u0259r \u015fey\u0259, h\u0259r k\u0259s\u0259 r\u0259\u011fm\u0259n m\u00fcbariz\u0259d\u0259n \u0259l \u00e7\u0259km\u0259m\u0259l\u0259rin\u0259 heyran olmamaq \u0259ld\u0259 deyil.<\/p>\n
Oxu.Az<\/strong>-\u0131n \u0259m\u0259kda\u015flar\u0131 bu g\u00fcn Daun Sindromlu \u015e\u0259xsl\u0259rin Reabilitasiya M\u0259rk\u0259zind\u0259dir. Bu m\u0259rk\u0259zd\u0259 \u00f6z istedadlar\u0131 il\u0259 h\u0259r k\u0259si sevindir\u0259n, bir-birind\u0259n \u00f6yr\u0259n\u0259n v\u0259 bir-birini \u00f6yr\u0259d\u0259n n\u0259 q\u0259d\u0259r g\u00fcl balalar var. S\u00f6z\u00fcged\u0259n m\u0259rk\u0259z \u201cQay\u011f\u0131-Sa\u011flam N\u0259sil Namin\u0259\u201d \u0130ctimai Birliyinin n\u0259zdind\u0259 f\u0259aliyy\u0259t g\u00f6st\u0259rir. Burada u\u015faqlara r\u0259sm, musiqi, r\u0259qs d\u0259rsl\u0259ri v\u0259 s. ke\u00e7irilir.<\/p>\n M\u0259rk\u0259zin binas\u0131n\u0131n k\u0259nardan maraql\u0131 g\u00f6r\u00fcn\u00fc\u015f\u00fc insan\u0131 c\u0259lb edir. \u0130\u00e7\u0259ri daxil olan kimi foyed\u0259 qoyulan piano diqq\u0259timizi \u00e7\u0259kir. Dey\u0259s\u0259n u\u015faqlar\u0131n da \u0259n \u00e7ox sevdiyi m\u0259\u015f\u011fuliyy\u0259t el\u0259 oxuyub, oynamaqd\u0131r.<\/p>\n S\u0259kkiz ildir bu m\u00fc\u0259ssis\u0259nin h\u0259kim-pediatr\u0131 kimi f\u0259aliyy\u0259t g\u00f6st\u0259r\u0259n K\u00f6n\u00fcl S\u00fcleymanova deyir ki, u\u015faqlar reabilitasiya m\u0259rk\u0259zin\u0259 q\u0259bul edilm\u0259zd\u0259n \u0259vv\u0259l yoxlamalardan ke\u00e7irilir:<\/p>\n \u201cHaz\u0131rda m\u0259rk\u0259zd\u0259 400-d\u0259n \u00e7ox u\u015faq qeydiyyatdan ke\u00e7ib. Pandemiya il\u0259 \u0259laq\u0259dar olaraq u\u015faqlar\u0131n davamiyy\u0259ti m\u00fct\u0259madi olmasa da, d\u0259rsl\u0259r\u0259 qat\u0131lan u\u015faqlar\u0131n say\u0131 da az deyil. Bel\u0259 ki, pandemiyadan \u0259vv\u0259l h\u0259ft\u0259nin be\u015f\u00a0g\u00fcn\u00fc d\u0259rsl\u0259r ke\u00e7irilirdis\u0259, indi h\u0259ft\u0259nin yaln\u0131z iki g\u00fcn\u00fc u\u015faqlar n\u00f6vb\u0259li \u015f\u0259kild\u0259 reabilitasiya prosesl\u0259rin\u0259 c\u0259lb edilir. Pandemiya d\u00f6vr\u00fcnd\u0259 yaln\u0131z onlayn qaydada f\u0259aliyy\u0259t g\u00f6st\u0259rdik. Pedaqoqlar\u0131m\u0131z, psixoloqlar\u0131m\u0131z, h\u0259kim-terapevt olaraq\u00a0m\u0259n \u00f6z\u00fcm d\u0259 valideynl\u0259rin qar\u015f\u0131la\u015fd\u0131\u011f\u0131 \u00e7\u0259tinlikl\u0259rd\u0259 onlara k\u00f6m\u0259k etm\u0259y\u0259 \u00e7al\u0131\u015f\u0131r\u0131q.<\/p>\n T\u0259\u0259ss\u00fcf ki, pandemiya\u00a0bir \u00e7ox \u00e7\u0259tinlikl\u0259r yarad\u0131rd\u0131, amma \u0259limizd\u0259n g\u0259l\u0259ni etm\u0259y\u0259 \u00e7al\u0131\u015fd\u0131q. Art\u0131q yava\u015f-yava\u015f \u0259vv\u0259lki qaydada d\u0259rsl\u0259rin ke\u00e7irilm\u0259sin\u0259 ba\u015flam\u0131\u015f\u0131q.<\/p>\n \u0130kin\u00f6vb\u0259li sistem t\u0259tbiq edilir. Birinci n\u00f6vb\u0259 be\u015f\u00a0ya\u015f\u0131ndan 10 ya\u015f\u0131na q\u0259d\u0259r olan Daun sindromlu u\u015faqlar, ikinci n\u00f6vb\u0259 is\u0259 10 ya\u015f\u0131ndan yuxar\u0131 Daun sindromlu u\u015faqlar\u0131n d\u0259rsl\u0259ri ke\u00e7irilir. Yuxar\u0131 ya\u015f h\u0259ddin\u0259 limit qoyulmay\u0131b. Kifay\u0259t q\u0259d\u0259r ya\u015fl\u0131, 40-44 ya\u015fl\u0131 Daun sindromlu insanlar da var ki, b\u0259z\u0259n m\u00fc\u0259ssis\u0259miz\u0259 \u00fcz tuturlar. B\u0259z\u0259n ke\u00e7iril\u0259n t\u0259dbirl\u0259rimiz\u0259 qat\u0131l\u0131b, i\u015ftirak edirl\u0259r\u201d.<\/p>\n H\u0259kim terapevt deyir ki, pandemiya d\u00f6vr\u00fcnd\u0259n sonra h\u0259r k\u0259sd\u0259 bir d\u0259yi\u015fiklik, aqressiya m\u00fc\u015fahid\u0259 edilir, Daun sindromlu u\u015faqlarda\u00a0bu bir q\u0259d\u0259r\u00a0k\u0259skin formada \u00f6z\u00fcn\u00fc b\u00fcruz\u0259 verir:<\/p>\n \u201cU\u015faqlar c\u0259miyy\u0259td\u0259 olmal\u0131d\u0131rlar. Amma h\u0259r k\u0259s kimi biz d\u0259 Nazirl\u0259r Kabineti yan\u0131nda Operativ Q\u0259rargah\u0131n m\u00fcvafiq d\u00f6vrl\u0259r \u00fc\u00e7\u00fcn t\u0259tbiq etdiyi qaydalara \u0259m\u0259l etm\u0259li idik. U\u015faqlar\u0131m\u0131z aras\u0131nda bu prosesl\u0259ri y\u00fcng\u00fcl ke\u00e7ir\u0259nl\u0259r d\u0259 oldu, k\u0259skin aqressiv formada ke\u00e7ir\u0259nl\u0259r d\u0259. \u00d6z\u00fcn\u0259 qapanan u\u015faqlar\u0131m\u0131zla i\u015fl\u0259r apard\u0131q. 1-2 ay \u0259rzind\u0259 apar\u0131lan reabilitasiya il\u0259 onlar\u0131 h\u0259min v\u0259ziyy\u0259td\u0259n \u00e7\u0131xard\u0131q.<\/p>\n Psixoloqlar\u0131m\u0131z f\u0259rqli metodlardan istifad\u0259 edirl\u0259r. U\u015faqlar m\u00fcxt\u0259lifdir dey\u0259, onlarla i\u015fl\u0259m\u0259k prosesi d\u0259 individual olaraq d\u0259yi\u015fir. Daim d\u00fcnya praktikas\u0131n\u0131 izl\u0259yirik, yenilikl\u0259ri m\u00fc\u0259ssis\u0259mizd\u0259ki u\u015faqlara da t\u0259tbiq edirik v\u0259 effektivliyini g\u00f6r\u00fcr\u00fck\u201d.<\/p>\n Pandemiya d\u00f6vr\u00fcnd\u0259 Daun sindromlu iki u\u015faq h\u0259yat\u0131n\u0131 itirib…<\/strong><\/p>\n H\u0259kim b\u00fct\u00fcn qabaqlay\u0131c\u0131 t\u0259dbirl\u0259r\u0259, qorunmalara r\u0259\u011fm\u0259n m\u00fc\u0259ssis\u0259d\u0259n k\u0259narda u\u015faqlar aras\u0131nda koronavirusa yoluxanlar\u0131n oldu\u011funu deyir:<\/p>\n \u201cOnlayn f\u0259aliyy\u0259t d\u00f6vr\u00fcnd\u0259 t\u0259\u0259ss\u00fcf ki, ald\u0131\u011f\u0131m\u0131z m\u0259lumatlar bizi \u00fczd\u00fc. \u0130ki Daun sindromlu u\u015fa\u011f\u0131m\u0131z koronavirusa yoluxdu v\u0259 x\u0259st\u0259liyi \u00e7ox a\u011f\u0131r, reanimasiya \u015f\u0259raitind\u0259 ke\u00e7irdil\u0259r. H\u0259kiml\u0259r \u0259ll\u0259rind\u0259n g\u0259l\u0259ni ets\u0259l\u0259r d\u0259, onlar\u0131 xilas etm\u0259k m\u00fcmk\u00fcn olmad\u0131. T\u0259xmin\u0259n 10-a yax\u0131n u\u015faq\u00a0virusa yoluxdu v\u0259 onlar\u00a0m\u00fcalic\u0259 n\u0259tic\u0259sind\u0259 sa\u011fald\u0131lar\u201d.<\/p>\n C\u0259miyy\u0259t olaraq bu g\u00fcn Daun sindromlu, Autizm sindromlu u\u015faqlara m\u00fcnasib\u0259t nisb\u0259t\u0259n d\u0259yi\u015fib. Art\u0131q \u0259vv\u0259lki kimi onlar\u0131 c\u0259miyy\u0259td\u0259n ay\u0131ran\u00a0n\u0259z\u0259rl\u0259rl\u0259\u00a0baxm\u0131r\u0131q. \u00c7ox ist\u0259rdim ki, bu tendensiya arts\u0131n. Biz onlar\u0131 \u00f6z\u00fcm\u00fczd\u0259n biri kimi bilm\u0259liyik v\u0259 onlar\u0131n bizim yan\u0131m\u0131zda \u00f6zl\u0259rini rahat hiss etm\u0259l\u0259ri \u00fc\u00e7\u00fcn \u00e7al\u0131\u015fmal\u0131y\u0131q.<\/p>\n M\u0259rk\u0259z bir s\u0131ra qurumlarla \u0259m\u0259kda\u015fl\u0131q \u00e7\u0259r\u00e7iv\u0259sind\u0259 Daun sindromlu u\u015faqlar\u0131n \u00f6zl\u0259rinin i\u015f f\u0259aliyy\u0259tini m\u00fcxt\u0259lif sektorlarda yoxlamalar\u0131na \u015f\u0259rait yarad\u0131r. Bu \u00e7ox sevindirici hald\u0131r. Sosial layih\u0259l\u0259r var ki, u\u015faqlar\u0131m\u0131z \u00f6zl\u0259rini s\u0131nay\u0131rlar. H\u0259tta yerli filml\u0259rd\u0259n birind\u0259 Daun sindromlu q\u0131za ki\u00e7ik bir rol da verilib.<\/p>\n U\u015faqlar\u0131n \u00fcz\u00fcnd\u0259 yaranan ki\u00e7ik bir g\u00fcl\u00fc\u015f n\u0259y\u0259 des\u0259niz d\u0259y\u0259r. Odur ki, onlar\u0131n daim g\u00fclm\u0259si, \u00f6zl\u0259rini yax\u015f\u0131\u00a0hiss etm\u0259l\u0259ri \u00fc\u00e7\u00fcn birg\u0259 \u00e7al\u0131\u015faq. Nec\u0259 dey\u0259rl\u0259r, \u0259sl dostlar xromosom saymaz.<\/p>\n 21 mart \u00dcmumd\u00fcnya Daun Sindromlu \u0130nsanlar G\u00fcn\u00fcd\u00fcr. G\u00fcn\u00fcn\u00fcz m\u00fcbar\u0259k.<\/p>\n Qeyd ed\u0259k ki, Daun sindromu 21-ci xromosom c\u00fctl\u00fcy\u00fcn\u00fcn trisomiyas\u0131 (\u00fc\u00e7l\u00fck) n\u0259tic\u0259sind\u0259 yaranan x\u0259st\u0259likdir. Sindrom 1866-c\u0131 ild\u0259 a\u015fkar edilib. \u0130ngilis h\u0259kimi Con Lanqdan Daun xarakter x\u00fcsusiyy\u0259ti olan bu x\u0259st\u0259liyi bir q\u0131z u\u015fa\u011f\u0131nda m\u00fc\u015fahid\u0259 edib.Bu x\u0259st\u0259lik onu k\u0259\u015ff ed\u0259n alimin \u015f\u0259r\u0259fin\u0259 \u201cDaun sindromu\u201d\u00a0ad\u0131n\u0131 al\u0131b. Daun irsi x\u0259st\u0259likdir v\u0259 x\u0259st\u0259lik u\u015fa\u011fa yaln\u0131z anadan ke\u00e7ir.<\/p>\n<\/p>\n
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